


Tuesday, May 20, 2008
Chicken Dumplings
If you haven't noticed, I am using this blog for virtually all of our updates. I hope that many of you have found your way back to this, it is so nice to hear from all of you, and also to know that we have so many people in our corner. You are all the reason why Don and I continue to move forward, sometimes very slowly, but still forward. (Aunt Noreen and Andrea-so great to hear from you!!)
First (business), I want to share with you all about legislation in support of legislation regarding stillbirths.
I am writing to ask you to co-sponsor legislation that would help the CDC and researchers better determine the risk factors associated with stillbirth and convey those risk factors to expectant parents. House of Representative Bill 5979, the Stillbirth Awareness and Research Act of 2008, was introduced by Representative Peter King of New York in an effort to address the lack of standardized data collection nationally with regard to stillbirth. Each year more than 25,000 babies in the United States are stillborn. More than 50 percent of these deaths occur in the last trimester of pregnancy and 15 percent occur during labor and delivery. Due to a lack of autopsy/investigation and inconsistencies in diagnosing these, more than 50 percent of all stillbirths remain unexplained. With standardized investigation and reporting of these deaths, researchers would be better able to determine the risk factors. H.R. 5979 would both standardize the definition of stillbirth and the method in which data is collected, in order to create a national repository of stillbirth data to assist researchers in conducting comprehensive studies in to the causes of, and possible preventive strategies for, stillbirth. The bill also authorizes a public awareness campaign promoting good prenatal practices, including monitoring movements during the last trimester of pregnancy, to reduce the risk of stillbirth. You can go to https://gov/wyr/welcome.shtml and cut and paste this letter.
Second, we just got past the 6-month anniversary of Quinlan's birth and death. November 14th was bitter sweet, burned deep into our memory...so surreal. I can't believe that much time has passed, and yet it seems like a lifetime ago. It seems some people in our lives have a hard time with us having a hard time. To that, all I can say is get over yourselves. Also, we are surprised that some would rather pretend this never happened, or feel uncomfortable with how we chose to remember him. We celebrate him every day, because we continue to love him. You don't have to, just give us the respect that we deserve. Mother's Day (or the idea of it-thanks Rya!) was tough, but we survived and will continue to, picking each other up, when the other has fallen. At the end of the summer, we check in with the docs, and if my health is good, then we have some decisions to make. Only time will tell. Right now, I (we) just don't know.
Third, I just got the second Remicade infusion. It seems to have went well. I woke up with coughing and phlem, but not as bad as the last time. My thumb joints are swollen still, but it has not become any worse. It seems to be a common, but relatively minor side effect. I wish I could tell you that I feel perfect. I think that is asking a bit much. However, I do feel better, and that is all I can ask for. After the infusion, my energy level has really picked up, and I feel good enough to sub and enjoy the elementary kids again. Last night I had some delicious chicken dumplings from The Wok Downtown. It really is the little things in life.
Finally, Sam, or as we call him, Po Po Beware, Doolittle , or Wigglesworth, (maybe even Chicken Dumplings), is having a fantastic time. I have had some issues with the camera and downloading, so please forgive me. I do have this photo of him at PetSmart just a few days ago. Sam has met so many people lately. He LOVES people (he's a Gemini of course). His recent friendships are Molly and Francis Paul, Robert and Rusty, my Mom and Mike, Tom, Mireya, Charlie, and Tomas, Russ, Riley, Bailey and Shadow, Kathi and Cathi, the Nowells including Miles, Liz, Roz, Ricky, Austen and Minnie, the staff at various petcos and petsmarts, the staff at Davis Auto Repair, and every single person he has ever passed on the street (who he tries to hug). Soon he is going to meet Kirsten, Asher, and Lola! He doesn't realize how beautiful this golden is-it could be love! Today he followed me outside to get the mail, and my neighbor returned him a few minutes later (he is so sneaky). Thankfully, he is smart, and polite:)
That is all for now. I am working on getting my blog more updated. I have so much to add, including a new blog in honor of Quinlan: www.QuinlanJames.blogspot.com (Under construction).
Love
Renee